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  <titleInfo>
    <title>Beyond the HIPAA privacy rule</title>
    <subTitle>enhancing privacy, improving health through research</subTitle>
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  <name type="personal">
    <namePart>Nass, Sharyl J.</namePart>
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  <name type="personal">
    <namePart>Levit, Laura A.</namePart>
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  <name type="personal">
    <namePart>Gostin, Lawrence O.</namePart>
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  <name type="corporate">
    <namePart>Institute of Medicine (U.S.)</namePart>
    <namePart>Committee on Health Research and the Privacy of Health Information, the HIPAA Privacy Rule</namePart>
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    <publisher>National Academies Press</publisher>
    <dateIssued>c2009</dateIssued>
    <dateIssued encoding="marc">2009</dateIssued>
    <issuance>monographic</issuance>
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    <extent>1 online resource (xiv, 320 p.) : ill.</extent>
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  <tableOfContents>The value and importance of health information privacy -- The value, importance, and oversight of health research -- HIPAA, the privacy rule, and its application to health research -- Effect of the HIPAA privacy rule on health research -- A new framework for protecting privacy in health research</tableOfContents>
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  <note type="statement of responsibility">Sharyl J. Nass, Laura A. Levit, and Lawrence O. Gostin, editors ; Committee on Health Research and the Privacy of Health Information, the HIPAA Privacy Rule, Board on Health Sciences Policy, Board on Health Care Services, Institute of Medicine of the National Academies</note>
  <note>Title from electronic title page (viewed Mar. 2, 2009)</note>
  <note>Includes bibliographical references</note>
  <note>Mode of access: Internet</note>
  <subject authority="lcsh">
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      <namePart>United States.</namePart>
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  <subject authority="lcsh">
    <topic>Medical records</topic>
    <topic>Access control</topic>
    <geographic>United States</geographic>
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  <subject authority="lcsh">
    <topic>Health</topic>
    <topic>Research</topic>
    <geographic>United States</geographic>
  </subject>
  <subject authority="lcsh">
    <topic>Privacy, Right of</topic>
    <geographic>United States</geographic>
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  <subject authority="mesh">
    <topic>Health Insurance Portability and Accountability Act</topic>
  </subject>
  <subject authority="mesh">
    <topic>Medical Records</topic>
    <topic>legislation and jurisprudence</topic>
    <geographic>United States</geographic>
    <topic>Guideline</topic>
  </subject>
  <subject authority="mesh">
    <topic>Privacy</topic>
    <topic>legislation and jurisprudence</topic>
    <geographic>United States</geographic>
    <topic>Guideline</topic>
  </subject>
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    <topic>Confidentiality</topic>
    <topic>legislation &amp; jurisprudence</topic>
    <geographic>United States</geographic>
    <topic>Guideline</topic>
  </subject>
  <subject authority="mesh">
    <topic>Research</topic>
    <topic>methods</topic>
    <geographic>United States</geographic>
    <topic>Guideline</topic>
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  <identifier type="isbn">9786612083570</identifier>
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  <identifier type="isbn">9780309125000 (electronic bk.)</identifier>
  <identifier type="isbn">0309125006 (electronic bk.)</identifier>
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  <identifier type="isbn">0309124999 (paper)</identifier>
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